Emersyn & Brittany; a story of hope, courage, support, and LOVE || Boston Children's Hospital
Emersyn & Brittany
Courage, Change, Hope, & Love
“Hi There … My Name is Brittany … I’m married to my best friend and we have three beautiful children and two crazy german shepherds.”
This was my introduction to Brittany and her beautiful family; to her Emmy.
“Last Tuesday, 8/27, my oldest daughter was admitted to Boston Children’s Hospital and Friday 8/30 diagnosed with MPAL (mixed phenotype Acute leukemia). Our whole world has been turned upside down. Her name is Emersyn and she is 13. She would have been starting 8th grade at Lewiston Middle school.
Boston Children’s Hospital is no stranger to us. We have been traveling here for 10 years to visit a group of specialist who take care of Emersyn. At age 3 she was diagnosed with Ataxia Telangectasia which is a very rare genetic disorder. This type of leukemia is rare as well. It seems to be our thing “rare.” Emersyn has an amazing humor, very intelligent, and very beautiful.”
“She is going to lose her hair… I specifically want to capture a session of her and I shaving each others heads.
The cries, the uncertainty, the laughs, and the love we have for each other.”
I hardly made it through the initial email before writing back “Yes. I’m there.” I didn’t know what else, how else, or in any other way to say that I wanted to be a part of something so important, something so thoroughly selfless.
As a Mom, I can’t imagine any of this. I work closely with Catalyst For Change Wear, where together we work with incredible organizations like Maine Children’s Cancer Program, Barbara Bush Children’s Hospital, I work with A Sisters Wish, Now I lay me down to sleep, as well as the Make A Wish foundation and I can say with full certainly that there is absolutely not amount of exposure that can prepare you to stand with someone who holds courage and bravery in the grips of their hands and the hope in their eyes for their child.
Brittany, I am SO honored to have been a part of this beautiful act of stoicism, hope, and LOVE. You’re radiant, and damnnnngirl you rock that new hair.
I asked Brittany if she’d like to have Emersyn’s story told, and this is what she’s shared…